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Who is Stephanie Romer?

I am a Congenital Heart Disease survivor who was born 36 years ago
with one of the most terminal cases of CHD, called Hypoplastic Left
Heart Syndrome, or HLHS.


I am a CHD Patient Advocate of 13 years, an author, motivational
speaker, and life coach 
who has made it my life's mission to turn all
of the"I don't knows" of CHD into answers. 


I have dedicated the past 16 years of my life to researching and
writing about the raw truth of CHD, survivors, families, spouses,
siblings and doctors; 
focusing on the cognitive development i.e.
mental health, affects of CHD.


Make sure to Follow Me to stay up to date with my Articles (below),
Advocacy work, book events, and my
Crazy-Beautiful Life with CHD.  

+IG & FB @SROMERAUTHOR
 

QUIETING THE CLOCK by STEPHANIE ROMER, MEMOIR OF A GIRL FACING DEATH AND CHASING FREEDOM
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